Five years have passed since Johnrose was diagnosed.
The former player has been living with the illness for a long time and has begun to decline.
As the 52 year old sits at home speaking through the aid of a gridpad, a device which is programmed with recordings of his own voice and also allows him to control his tv and lights, how is he?
I'm not terrible. He told the radio station he was expecting to hit the wall.
Johnrose banked his voice before his symptoms began and the technology is remarkable, allowing him to converse via a screen which then plays what he has to say.
It is important for those who know me to hear me. It was hard for a while.
The technology only works if you record a few words. It can now be done in less time thanks to the advances in technology.
I did it in less than 40 minutes, and I hoped I wouldn't need it.
Johnrose spoke about his diagnosis to the radio station. He talked about how hard it is to be told how bad the disease is.
He is now confined to a wheelchair. His sense of humor has not been lost.
I'm aware of little changes, mainly to do with movement and getting used to it. He said that he's been fortunate.
As always, my mind is positive. I know I could die at any time. That would be the case regardless of having a political party. There have been changes. I don't pay much attention to them.
There you go, could be worse, I'm more concerned with the constant saliva and constant vomiting.
For someone like Johnrose, who had an illustrious career in the Football League, football can be a bit of a mixed bag.
With four of his clubs in the Championship this season, is he looking forward to the new season?
I can't wait but I can't believe I'm saying this," he said. Mental health issues have taken their toll on me. I enjoy football, but now I miss it.
It's made things more interesting, even though I was gutted that they were demoted from the premier league.
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